Emmie is a 13-year-old girl with neurofibromatosis type 1 (a neurogenetic disorder characterized by nervous system tumors), epilepsy, ADHD, and Autism Spectrum Disorder with intellectual disability. She is about to go to her neurologist’s office with her mother for a routine follow-up visit. Emmie has been doing well recently. She has not had any seizures for 1 year and has been doing well on a new ADHD regimen for the last few months.

Emmie requires support at home and at school. She is able to complete many of her activities of daily living on her own but still depends on her mother’s care. Her mother is planning to apply for some kind of guardianship and will be starting that process when Emmie is a bit older. There was an IEP meeting last month for Emmie, and a big focus of that meeting was to talk about her transition to high school and what happens after high school. Her mother and father are currently thinking about keeping Emmie in high school until she turns 22.